California Parkinsonās Disease Registry
California Health and Safety Code (HSC) 103870-103870.2 requires healthcare providers diagnosing or providing treatment to Parkinsonās disease patients to report each case of Parkinsonās disease to the California Department of Public Health beginning July 1, 2018. The Richard Paul Hemann California Parkinsonās Disease Registry (CPDR) is a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinsonās disease.
Surprisingly, little is known about how Parkinsonās disease is distributed among different population groups and whether the patterns of disease are changing over time. Californiaās large and diverse population makes it ideal for providing important information about this disease. CPDR will expand our understanding of Parkinsonās disease to ultimately improve the lives of those affected.
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āLandmark Moment in Search for Parkinsonās Biomarker
The Michael J. Fox Foundation announced the most significant breakthrough to date in the search for a Parkinsonās biomarker: a highly accurate biological test for Parkinsonās disease. The test is capable of objectively and reliably detecting the disease at the molecular level ā even before the onset of symptomās.ā
This is the first biomarker capable of identifying people with Parkinsonās, or those at risk for Parkinsonās, through abnormal alpha-synuclein ā the hallmark protein that misfolds in Parkinsonās ā in the living brain.āāāāāā
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PROGRAM UPDATE (March 2024): The
Data Disclosure Policies and Procedures (pdf) from the California Parkinsonās Disease Registry are now available. Mandated reporting of Parkinson's disease cases will continue through 2024 and beyond in accordance with
Assembly Bill No. 133. If you are a provider and have not yet submitted case information to the registry, it is not too late. CPDR will continue to accept case reports from previous reporting periods. The upcoming deadlines for 2024 and beyond are presented below.
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Data Submission Deadlines:
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āāJulyāSeptember
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āDecember
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OctoberāāDecember
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āMarch
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JanuaryāāMarch
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āJune
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āAprilāāJune
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āSeptember
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ā ā*For inpatient settings, the discharge date may be used as the date of the patient encounter.
Note: CPDR will continue to accept case reports from previous reporting periods.
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